Pat on Hazel Quinn’s ‘Hopefully Not Too Bad’ Radio Show

Hazel Quinn will be interviewing Pat on this Monday’s show and you’ll hear in greater detail WHY it’s so important. 100,000 signatures are needed to get the Welfare Reforms discussed again in Parliament . This is democracy in action; be a part of it to protect ALL our futures. This is SO important. So please listen to Hazel and Pat – 3-4 pm Monday Click here to listen Click here to sign Pats Petition, then share with others asking them to do the same....

Living with Multiple Sclerosis

. Guest post by Kirsty . Living with Multiple Sclerosis  is like been on a roller coaster at Alton Towers, plenty of ups and downs. I had a stroke 7 years ago now and was diagnosed with relapsing remitting MS 5 years ago, I had to learn to use my left arm and leg, couldn’t tell the difference between hot and cold, but luckily my speech wasn’t affected. I battled through it all; there was light at the end of the tunnel.The diagnosis of Multiple Sclerosis was a huge relief to me because the doctors finally gave me a name to what was wrong with me. The early days were very hard, I was in a lot of pain, I had weakness and couldn’t do what I normally did, I couldn’t always bath myself, I could only walk a few steps and I was tired, what was norm for me was no longer norm. But with the support of my loving partner, friends and family, I got through it. . Over the years, my life has improved I haven’t had as many relapses, I got stronger, fitter, I learnt to ski, I never thought I would be able to do that, when at one point I had trouble walking. . During the years we found out the triggers to my relapses and that was stress, so under his advice he told me to lead a stress free life and do yoga, but having a stress free life isn’t always easy. There are days when I am in so much pain I want to cry and hide away, I could...

Ask US what we want and LISTEN

  Pat writes…..    When I lost my sight in 1984 there was little if any support for us. You sank or swam. Together with a folding white cane, free only in a very few local authority areas, I launched myself into my new, unrecognisable world. The simplest of tasks were, and still are, impossible.Washing machine settings – to boil socks or not?. Housework – polish or air freshener? Toothpaste or hand cream? Shampoo or bubble bath? Beans or dog food on toast? All this before even venturing into the outside. The list is endless. The worse thing for me, and so many others, though is literacy. Without sight you can neither read nor write. No matter how many hand held magnifiers you have – you are still illiterate.The best for me was a ‘liquid level indicator.’ You put it in your mug and it vibrates when the boiling liquid reaches a certain level. The fact you have no idea where to pour the liquid seems immaterial to its designers. I found it works equally well when pouring gin with the only downside being no room for the tonic. My friends love coming here. Maybe because I had a young family to look after or maybe because I am an outgoing person – whatever the reasons – I learnt survival. There is nothing in this world that can prepare you for living with any disability. Experts, mostly able bodied, have university degrees in dealing with the emotional side. Pretty useless I always felt. Best intentions maybe but as the saying goes ‘it takes one to know one.’ When my...

Who is Pat’s Petition – the answer

  For months now the question being asked is – ‘who is Pats petition ?’ The answer of course is simple – WOMEN ! 7 women helping me, from all parts of the UK, who have never even met. Their aim is to bring together, those women and men who feel so strongly that the welfare reform bill is both unfair and not fit for purpose. That cuts to local services are not acceptable. On this International Womens Day, women around the country are joining hands across bridges. My own little bridge may look empty but it is not. The words of Pats Petition are reaching out to you, and you, and you. Holding hands together we will shout out our message and our voices will be heard. Join with this small group of women who are making a difference I urge you to sign this petition, share it with family, friend, contacts. Add to home pages of blogs, your face book pages. Ask those people to do the same. The petition site itself has share buttons, use them. Pat x...

Our Social Care system is broken

The Care Lobby is here. Full details on their website  CareLobby 2012 are also staging the world’s first twobby – an online lobby so that even more people can tell MPs that a change in social care is urgently needed. This will run at the same time as the lobby at parliament. Our social care system is broken. Support the twobby TODAY Pat’s Petition covers the “perfect storm” of all the changes that impact on disabled people and carers including Welfare Reform, NHS reform, loss of Legal Aid, cuts to local authority budgets and changes for staff. It is believed that no-one in government has considered the cumulative effect of all these changes, and welcome the report and recommendations of the JCHR.   Will YOU join with over 32,000 people and press the government to carry out a full impact assessment.   Sign Pats Petition  ……….. and then become an organiser. Go out and gather more support. Add it to blogs, websites, as a signature at the end of your emails. If each person gathers 5 names and so on, we can do this.    ...