With the help of caring GP’s and some excellent medical services I have managed to care for David for nigh on 20 years. As his spine continues to degenerate he needs more help, support and treatments. The injuries he sustained are now compounded by the additional disintegration of his shoulder and hip. Further complications of memory loss caused by many years of strong opiate based prescription drugs make life very hard for him.
He has many other related conditions – some minor, others more invasive. His package comes untidily wrapped with chronic pain ribbons and reactive depression bows.
The calendar is filled with hospital appointments; follow ups with his GP and little crosses to remind him to change his morphine patches. His drugs, which started in a biscuit tin, now take up 4 shelves in the kitchen cupboard, with an overflow to his bathroom and bedside locker.
A gentle man who can be reduced to a screaming wreck when the pain becomes so unbearable not even the morphine works. A screaming wreck hurling obscenities at me whilst banging his head to make the pain stop. A screaming wreck who is my gentle husband, and I can do nothing for.
I am told I am valued by society. I am told there is help for me to deal with being a carer. Oh really? Let’s start with social works. They can’t visit, as they are 3 social workers short. They only have 4. Earliest appointment is 3 weeks away but they may be able to squeeze me in before that. They manage a squeeze – likely at some other’s cancellation – and I am assessed. The assessment joins the previous one with the same words written on them. ‘No services available.’
Ignore them while their conditions deteriorate which then needs costly treatment. Help them before they become unable to function with some normality. Hasn’t it always been ‘prevention is better than cure?’
Maybe, but not any more. Welfare Reform has slashed Services at local level. Benefits cut to disabled people across the country. No longer any services provided and you don’t have any of your disability allowances to look elsewhere. Doctor – help me. What can they do? Nothing without that fall back safety net of care. Suddenly more and more people are admitted to hospital. No beds – no resources. If you do manage a bed you will get no care on discharge. Back on the merry go round again.
No government would completely abandon those in real need would they?
You’d better believe it – they would, and they do.
Sign my petition and share, asking your family, friends and contacts to do the same. It asks the government to -
Stop and review the cuts to benefits and services which are falling disproportionately on disabled people, their carers and families
Tags: benefits, blindness, carers, carerwatch, disability, disability living allowance, employment support allowance, hardest hit, maria miller, Pat's Petition, personal independence payment, spartacus report, universal credit, welfare reform