Posts Tagged ‘independent living’

We stand united together and will grow and grow

Sunday, April 7th, 2013

As a gardener I am always looking for new ideas to add to my garden. Inspiration comes in all shapes and sizes. Like most of us who enjoy plants and trees – each new addition means a little less lawn to cut as we find a space for our latest acquisition.

Up here in Scotland we have some beautiful natural stone. Most of it huge and attached to a mountain but my garden has its own fair share.

Granite is plentiful in many areas. As such it is used a lot in buildings as it is one of the hardest stones known to man. And woman who digs it out of her garden!

 

cairn

A cairn is often used to mark the tops of mountains – people who reach the summit can add a stone. They are also used to mark paths keeping travellers safely away from the dangers of the edges. The lasting durability of the stone cairn is a symbol to those that follow behind.

 

So the idea of building a cairn in the garden was born.and it will represent those 62,709 people who signed Pat’s Petition before it closed.

I laid the first stone and it will be added to as and when weather, time and availability of gathered stones allow.

 

cairn laying 1st stone 2

I don’t think I can count 62,709 but will use one stone per 100 signatures. The strength and hardness of these stones represent us all – disabled people, carers and their families.

 

PP closed 4 months ago but we are still inundated with requests from people wanting to add their support. To this end a space has been created here. New stones will continue to be added to the cairn as these numbers increase.

Like the cairn which won’t crumble into the soil – we stand united together and will grow and grow.
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There are still some important petitions open on the government website.

 

WowPetition  sign here   – further details of the campaign group here

 

Stop the Abolition of Disability Living Allowance for Personal Independence Payments  – sign here

 

 

 

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This is just the end of the beginning – Welfare Reform

Monday, April 1st, 2013

Iain D Smith

The government is bringing in so many cuts that a Cumulative Impact Assessment is far too difficult

April Fool – it’s actually really very simple 

 

At last more and more people are waking up to the realisation of the horrors lying in wait for disabled people, their carers and families. At last there are debates in Parliament with dozens of MPs relating true stories from their constituents. They all tell the same story. How disabled people, those with serious illness, and carers are being hit the hardest.

And this is just the end of the beginning.

Six more drastic cuts come on line today.

It is the perfect storm

That’s why I’m so proud of Pat’s Petition and what we achieved together.Pat’s Petition asked the government to “stop and look at the way all these changes would add up and impact on the lives of disabled people and their carers.” 62,709 people signed in the year that was open to us.

But the government refused. They say it is too difficult. You can read their response on Pat’s Petition here . They are conducting one enormous social experiment and leaving it for history to tell them what they did to us.

How can they get away with this?

Well – they can’t get away with it. We won’t let them. And neither will you.

The government are pretending that it is amazingly complicated when we are asking for something that is really simple. We are asking for an assessment of the impact on individual disabled people. There is no reason why they can’t run example cases through all the benefit changes one by one and show us, and the voters, exactly what they are doing to individual disabled people.

Scope/Demos  have released research on these changes. And it isn’t as impossibly difficult as the government maintain.

We aren’t going anywhere until the government face up to their responsibilities and produce a projection of what their policies are, and will be doing, to disabled people and their carers.

Pat’s team is working with many other campaign groups and we are meeting with government statisticians to discuss how they can carry out a Cumulative Impact Assessment.

The WOW petition is still active and you can sign that here. Their number of supporters is growing daily. Please share this petition as wide as possible asking others to sign and share too.  You will note they have had a preliminary response in which again the government states -

“Cumulative impact analysis is not being withheld – it is very difficult to do accurately and external organisations have not produced this either.”

This is NOT acceptable.

We still receive many emails and requests from people wanting to support this campaign. To this end a space has been created here to add your support, comments can be added too.

This Cumulative Impact Assessment

is going to happen

 

 

 

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TeamPP heads to London tomorrow to meet with Liam Byrne

Tuesday, February 5th, 2013

Pats Banner

 

Early  Wednesday afternoon Feb 6th, will see 5 of us meeting with Liam Byrne in London. 4 of us from PP with the 5th member from VIA Scotland – she will ensure Pat arrives safely and in a timely manner.

We are backed by others who can’t make the journey, and our memories of our friend who died just as we reached the petition end.

It is incredible to think that although PP has worked together for 18 months, and in a larger on line group before that, most of us have never been able to meet each other. We will spend a few hours together then leave for our respective homes spread many hundreds of miles apart.
We will have with us printed statements of your support, your real life stories, over 62,700 signatures and many questions to be answered. We have prepared as much as we can for what will undoubtedly be an interesting meeting with Liam.

Can we ask you to pledge your tweets tomorrow to this meeting. Hashtag  #TeamPP , especially from 2pm onwards when the meeting starts.

This is to represent not just those attending this meeting,

but each and every supporter/signature/group/charity.

 

This list below is not complete, please accept apologies if we have not as yet added your name or that of groups/organisations you belong to. It will be updated over next few days.

 

 

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Berkshire DPAC supporting statement for Cumulative Impact Assessment

Monday, February 4th, 2013

Received from Berkshire DPAC

 

These are just some of the things that have impacted on disabled people – at a time of mass unemployment and recession.

The debate in the House earlier this month highlighted the appalling impact of the Work Capability Assessment ALONE on disabled people. People with the most serious and complex impairments can no longer apply for help from the Independent Living Fund, as this has been closed to new applicants. It will be closed completely in 2015, throwing its users on the mercies of local authorities who will apparently not have ring fenced money in their rapidly decreasing budgets to support this. As from April this year the government starts to remove Disability Living Allowance from anybody who is able to mobilise (I use this word advisedly since it includes people who can wheel their own wheelchairs) more than 20 m. They have reduced this distance from 100 m in one fell swoop and failed to put this figure in their consultation paper.

Despite the increasing numbers of administrative errors and technical problems within the DWP, which have caused deaths in some instances – one was quoted in the debate last week – and massive distress in many, many others, the government is also withdrawing legal aid for appeals by benefit claimants as of the 1st of April.

Then there’s the bedroom tax, penalising families of sick and disabled people who need extra bedrooms to cater for things like storage space for equipment, or where it is impossible for anybody else to sleep in the same room as the claimant. Meanwhile social care is denied to the vast majority of people of any age who need it, because local authorities are not receiving enough money to meet the real need.

And now they’re introducing new and frankly insane guidance to the WCA, as if it wasn’t bad enough already. Assessors will no longer be able to consider issues like the depression that often accompanies chronic pain for example, or the physical impact of medication for mental health problems. Why? Because the new guidance insists that people must only be assessed on either physical impairments or mental impairments. Furthermore assessors, who we know rarely have the qualifications or expertise to do so, will be allowed to IMAGINE that a bit of equipment or a type of therapy might help you – and deny you your benefits until you’ve tried them out. Please bear in mind this could take months, in the case of therapies and could cause actual harm in the case of equipment.

All of these lead to stress, anxiety, physical and mental ill health, especially because of cuts to benefits and available cash. They also leads to isolation, depression and in some cases suicide. Some people are told they are fit for work by ATOS but when they go the Job Centre, they tell them they can’t satisfy the requirements for Job Seekers Allowance and therefore will get nothing.

As we have seen, the Work Programme is utterly failing disabled people (Panorama 28/1/2013).

Which other group in society has been hit by as many cuts as these? How can the Government possibly justify its refusal to do a cumulative Impact Assessment? It is no surprise that the references to Nazi Germany’s treatment of disabled people are becoming more frequent.

Merry

 

I dont want to go in a care home – Nadia

Monday, February 4th, 2013

 

Received from Nadia Clarke

scissors

I worry about the future as I have been told that my funding may not be enough for me to have the right amount of support to enable me to live my life. This will leave a huge impact on my life as I live independently with full time support from my PAs.

It is important to me that I have full time support for in the future, as both of my parents work full time and I am hoping to attend university this year or leave home to live independently.  I don’t want my parents to PA for me as no other 20 year old has their parents looking after them why  should this be different for me??? I want my parents to be parents to me and not my PA’S, I do not want to feel belittled and to be made to feel like a child.

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Scope CEO supports the call for a Cumulative Impact Assessment

Tuesday, January 29th, 2013

scope

Richard Hawkes, CEO of Scope has written a piece for the New Statesmen describing the challenges ahead around disability and welfare reform. We recommend you read it.

Richard has always supported the call for a Cumulative Impact Assessment. He said to us -

“A Cumulative Impact Assessment may be difficult but it is essential. We should not be experimenting with people’s lives.  The government needs to look at the bigger picture of the changes made by all its departments and understand the combined impact of these. I hope that Pat and her supporters at Pat’s Petition can have a productive discussion with Liam Byrne to get Labour party support for an assessment.”

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DPAC support the call for a Cumulative Impact Assessment

Friday, January 25th, 2013
DPAC

Received from DPAC

Disabled people are facing attacks against their human rights and civil liberties from so many directions it’s difficult to keep up with all of them. We are strongly opposed to the way disabled people are being forced to live in fear every day of their lives.

 

Some of the main attacks disabled people are facing include

·        the privatisation of the NHS.

·        Lack of social care and support funding to allow disabled people to take part in society.

 

Social Services budgets have been (more…)

Pat’s Debate – your support needed more than ever

Saturday, December 8th, 2012

After a year of very hard work and wonderful encouragement from all of our friends and supporters Pat’s Petition  closed with over 62,600 signatures. We then sent an open letter to Liam Byrne.

We are delighted to announce that all the effort succeeded

and we have a result.

Liam Byrne has been in touch and the Labour Party are giving us an Opposition Day Debate in the Commons based around Pat’s Petition. This means the debate will take place in the Chamber at the House of Commons with Ministers and front benchers as well as back benchers.

So fantastic news – Pat’s Petition is moving to Pat’s Debate. Tell everyone – shout, sing, tweet using hashtag #PatsDebate. Let’s shake this government into listening to us at last.

The debate will probably take place some time in January and we will only have a weeks notice so the important thing now is to get ready for the debate and make sure all the issues we have been campaigning on get attention.


The theme of the motion for the debate will be the Pat’s Petition demand that the government – Stop and review the cuts to benefits and services which are falling disproportionately on disabled people, their carers and families and a demand for a Cumulative Impact Assessment. It’s a very wide brief so if you want to focus on a particular issue that’s fine.

We will need lots of help from you all to make sure that after all your effort this debate gets real results.

We are hoping that many of you will put up blog posts in support of Pat’s Debate and that we can collect the links together here.

We will also need your help to ask MPs from all Parties to speak in this debate and if we can direct them to your blog posts it will show them the kind of messages we want to put across.

Contact your MP details via this link

Watch this space to see how the plans for the debate are progressing.

Time is running out.

Please get behind this debate and make it a game changer.

Pat x

for further details contact  -  patspetition@gmail.com

If you have any suggestions/comments, please add them below.

 

 

All Pat wants for Christmas is …..

Monday, November 19th, 2012

 

YOUR continuing support in calling for a Cumulative Impact Assessment regarding changes to benefits and services

Thank you to all our supporters. It feels like such a long time ago now that the petition finished, but it is only three weeks. In that time you haven’t heard much from us, but believe me, we’ve been busy.

We may not have reached the magic 100,000 signatures needed to trigger a potential debate – but that’s just a number.

 When did a little thing like that stop us?

We have written to Liam Byrne and Ed Miliband (see copy here), asking that they request a debate in parliament regarding a Cumulative Impact Assessment. This is within their powers and we hope they act promptly.

Please can you e-mail Liam and tell him how much this means to you and how strongly you feel about this.  ( byrnel@parliament.uk )

It would also help if you could write to your own MP. (To find your MP insert your postcode here)

Tell them that you want a debate, put the pressure on them to secure a date. And at the same time, raise their awareness of what these changes mean for us. When it gets to a debate, we’ll need to make sure all MPs know the true impact for their constituents. Let’s face it, their surgeries are going to be filled with people once the full effect of these changes hit.

We know that. Let’s make sure they do.

It may be that you fear losing Housing benefit or Disability Living Allowance.

It could be that you worry about losing services from social care, or that you have lost a valued member of staff in the NHS changes.

You might be in the middle of an appeal for Employment Support Allowance or have just received a dreaded brown envelope.

Whatever it is, tell them in your own words. It doesn’t have to be long, but the passion and truth of your real story could make a difference for all of us.

 Please do it today

We have such a wide range of people supporting us now that we really hope with your help that Liam will give us this debate.

So please, let us know which MP you contact, several ways to do this listed below. Send us all the feedback you get from your MP so that they can be involved when the debate happens.

Add to pp facebook page here. www.facebook.com/patsepetition

Email info to patspetition@googlemail.com

Tweet to @patspetition , also use hashtag #patspetition

Add in comments below

 Together we can do this

 

Pat

x

Please share on facebook and twitter

 

 

Individually, we are one drop. Together, we are an ocean

Sunday, November 4th, 2012

Individually, we are one drop. Together we are an oceanRyunosuke Satoro

Thank you everyone.

The e-petition closed on 1st November, with 62,581 signatures (some people may yet confirm their emails so that might still increase slightly).

Pat’s Petition has closed but the campaigning continues. We will build on the knowledge we have gained, the contacts we have made and the lessons learned. The words of the petition are as fresh and meaningful as they were 12 months ago and our commitment to them hasn’t changed.

I want to emphasise how well you/we all did. Through networking with others we helped raise awareness of the changes ahead.

This weekend was always going to be a quiet one for us. A chance to catch up with ourselves. If only!   The sheer volume of supportive emails is still keeping us extremely busy. Many have questions that need answering. Some have suggestions that need to be considered.

We have been asked repeatedly what next for Pats Petition?

We do have plans but we need time to clear the decks first.

We will always post our news on -

campaign blog here,

as well as our facebook

and twitter .

You can also send emails to patspetition@gmail.com

Feel free to add comments below.

Thank you to each and every one of you for your support over the last year.

WATCH THIS SPACE

 Pat x

 

* If you are still waiting for a reply from us please be patient

** This was always a People’s Petition and we were amazed at the support in the final 48 hours just before the petition closed. With a final push in e-newsletters from Benefits and Work and Hardest Hit, and a well co-ordinated event on Twitter organised by  @Epipsychidion86, an extra 5000 people signed in support.

Following on from this the wider disability community is coming together to join forces. On Tuesday 6th November at 8pm there is to be a discussion about petitions in general, and exchange ideas. Follow  @JeffCeSoir1 and @Epipsychidion86. Till further plans are decided on, they are using the hash tag #patspetition, as a meeting place.

We hope as many people will be able to participate as possible.